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Hopeful.pheochromocytomasupportboard

About me

Total posts:
1
Profile views:
55
Last seen:
10/25/16
Joined:
10/25/16

What I've Been Up To

  • Hopeful added a topic...
  • Hopeful buzzed...
    • Oh yes, I have the French-Canadian founder SDHC mutation. Thank you very much.
  • Hopeful buzzed...
    • ...Quebec or Ontario). Also, to anyone operated in that area, what were the impacts of the surgery, the sequella? Also, did anybody tried radiosurgery (Cyberknife) instead of surgery? And if so, did the radiosurgery succeeded to normalize your hormones?
  • Hopeful buzzed...
    • Hi to everybody, I have been diagnosed with a carotid paraganglioma (3.7 x2.5x2.3 cm) secreting dopamine (and maybe cortisol). I live in Canada. I have a few questions for you: could you refer me to the most experienced surgeons in Canada (preferably in

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